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Showing posts from May 31, 2020

May 2020

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Yes, we are still in quarantine for the COVID-19 virus.  Many establishments are starting to look at opening up, mostly because of the loss of revenue.  It will be interesting to see what the next few weeks bring. Tiny Baby update from Skylar 5/2/2020   Me and Tay got to hold her sweet hands and feet today. I also got to feed her some of my milk through her feeding tube and change her Itty bitty diaper. She's a true miracle and I can't even believe how precious she is. Every day we have her is a true blessing. Last night she had a grade 3-4 brain bleed which is pretty scary and we're praying they don't get worse but are just trying to stay positive right now.. You have too many people that love you so much baby girl hang in there.  The next day, Little Harper left her body behind as she journeyed back to heaven.  Such a hard and very sad situation!  Honestly, she would have had to fight very hard throughout life with long hospital stays and very probable brai